Wednesday, March 21, 2012

African Backyard Safari


The weather has been so unseasonably warm this winter it feels like we missed out on winter!  Usually we end up cutting the grass around the middle of April.  Last week, I discovered grass (and weeds) up to my knees. We had a yard service last year.  I have been trying to call him, to no avail. So, I got out our lawn mower.  It was dead.  I changed the oil and spark plug………………nothing.  I called it.  So, Monday we bought a new little push mower and Tuesday Aaron put it together.  This brings us to tonight.  I got the mower out and started mowing the front.  

 Logan actually asked if I could show him how to mow.  Of course!  (Hehehe!:))  He wanted to mow our neighbor’s yard, which he did.  When I asked him to mow our front yard, he was suddenly tired and plus didn’t I know he has allergies?!  (and so getting OUT of mowing the yard begins!)  I did the front and side yards pretty quickly since they weren’t really bad.  Then, I went to conquer the back.   

At this point, Joey came out onto the patio to watch.  Jokingly, I said, “Be careful- I don’t know what animals are going to come out of this tall grass!”  I started mowing.  I Had gotten through about half the lawn when I noticed Joey was still sitting on the patio.  Worried about the pollen and grass the mower was unsettling, I told him to go inside.  That is when my baby boy looked me in the eye and said,

“ Mom, I want to watch!  I’m watching for a tiger!”

Sunshine League Schedule

GO HORNETS!  I should have my roster soon and I will be calling all of our players.  However, this is the tentative Schedule for Sunshine League:





 

          THE SUNSHINE LEAGUE


          GAME SCHEDULE 2012

DATE
TIME
HOME
VISITORS
April 14th
9:00am
BANDITS
FLAMES
SPRING SEASON
10:00am
WARRIORS
HORNETS
April 21st
9:00am
HORNETS
FLAMES

10:00am
BANDITS
WARRIORS
April 28th
9:00am
FLAMES
WARRIORS

10:00am
BANDITS
HORNETS
May 5th
9:00am
WARRIORS
HORNETS

10:00am
FLAMES
BANDITS
May 12th
9:00am
HORNETS
FLAMES

10:00am
BANDITS
WARRIORS
May 19th
9:00am
FLAMES
WARRIORS

10:00am
HORNETS
BANDITS
May 25th
6:30pm
WARRIORS
HORNETS
**NIGHT GAME**
7:30pm
BANDITS
FLAMES
October 6th
9:00am
FLAMES
HORNETS
FALL SEASON
10:00am
WARRIORS
BANDITS
October 13th
9:00am
BANDITS
HORNETS

10:00am
FLAMES
WARRIORS
October 21st

BANQUET

Wednesday, March 14, 2012

FAMILY

(This letter is me trying to sort through feelings.  I apologize if it is choppy and unorganized. As you could tell from my post on facebook,  yesterday was a difficult day. Our family is on a journey right now.  I know we will get through it.  We appreciate those who are keeping us in your prayers. ) 


Given the current circumstances, I have been thinking a lot about family lately.  Everyone’s family is different.  If you think about your own family, you can probably even break it down into several different families.  You have your mom’s side, your dad’s side, the family group you grew up in, The family you have presently, in-laws, ect.  You get my point.  You may, like me, have friends you consider family.  Aaron told me years ago, he sometimes has a hard time understanding the relationships our family has.  He grew up in a military family and lived many years overseas.   He has probably seen my grandparents more times than he did his own.  Since I did not grow up in a military family and both sets of grandparents lived only hours away, I saw them a lot.  As a result, I had/have a great relationship with all of them.    My relationships with both sides of my family are different.  Unfortunantly, my relationship with my Dad’s side is strained.  So let me focus this conversation on my mom’s side of the family.  That is, after all, why I have been thinking so much about this topic in the last few weeks.  

My mom’s side the family consist of my grandmother, Grandfather, two uncles, six first cousins, and many, many, many great uncles, Great Aunts, and other cousins.  Just to give you an idea, My Grandmother had 6 brothers and sisters.   I spent every summer at my grandmother’s house for as many weeks as I could talk my parents and grandparents into.  Grandma lives on a farm and there are always different animals.  In my life, I have bottle fed cows, goats, and even a deer once.  She also has ponds to fish in, bales of hay to climb on, fruit trees to pick, and there were always cousins to play with.  I loved it there.  

 A few years ago, I was at our annual family Christmas.  I was walking in the front yard with my cousin, Michelle. To the left of us, Michael was taking the smaller kiddos on four wheeler rides.  In front of us, other family members were shooting skeet.  My uncles were sitting on the back of the truck eating oysters out of a cooler.  It hit me…..Like an epiphany.  Turning to Shell, I said, “We really are redneck aren’t we?”  Redneck or not, our family is tight.  We take care of each other and are extremely protective of our own. (Let me also say, when you marry in to our family, you are one of us. Be warned!) My cousins and I have grown up almost like siblings. My uncles were like 2nd parents. I knew they would get me just as quick as my parents if I even stepped a toe out of line.  

About two years ago, my Uncle Bobby passed away.  Although I knew he had some health problems, his death still came as a shock.  I remember going to the hospital to see him the weekend before he died.  It was horrible, even more so for my cousins who were losing their Dad.  My mom had a hard time with it.  She was the oldest.  Being the oldest  child, I think you just naturally expect to go first.  I know I never want to go through losing my sister.   My grandmother use to tell me about her mother-in-law who had seven kids.   She buried all seven before she died herself.  My grandmother always said the same thing, “ Karyn, I can imagine no greater hell than burying your own children.”  

Fast forward to today.  Our family is rallying again.  My mom’s baby brother, my uncle Charles, is dying.  Today, the doctor told him it wouldn’t be long.  We are doing what we can to help him.  My mom has moved in with him to care for him in his final days.  My mom is a force to be reckoned with.  She is so amazing.  I don’t think I have ever met a stronger woman than my mother.   I don’t know what my Grandmother is  going to do.  I look at my grandmother.  She seems so weak and frail.  Yet, as she faces her greatest nightmare, I see the strength she carries.  

It is hard to imagine him not being here.  He always has been here.  When my first marriage imploded, he was the first one I called.  He was at my house in fifteen minutes with 3 trucks and 4 extra men to pack me up.  Once, Joey told him he loved watermelon.  My uncle sent to our house TWENTY of them.

A few weeks ago, I was staying at my uncle’s house.  It was late and the only people up were the two of us.  We talked.  We talked about stories from the past, what we remembered, and our family members.  He told me what it was like for him growing up.  Some of the things he told me I knew already.  Other things were new to me.  He talked about what the past few years had been like, our triumphs, our regrets.  We talked about dying and heaven.  He told me what he wanted when the end came.  I told him how much he means and has meant to me.  Sometimes, we just sat in silence.   At one point, he looked up at me and said, “I love you, girl. You know that, right? ”  Yes,  I know that.  That is the great thing about our family.  Good or bad, not much goes unsaid.

Monday, March 12, 2012

6 Things You Don't Know About A Special Needs Parent


Ealier today, I had a friend make a comment about my role as a mommy.  She implied I never let anything get me down when it comes to raising my children.  She was specifically talking about raising Tyler, my special needs soon to be teenager.  Hmm…. This was interesting to me since I have been struggling emotionally lately.  When I got home and checked facebook, I found an article posted on the page for a special needs group we belong to.  Needless to say, it fit.  I am going to copy some of it here. 
Maria Lin
6 Things You Don't Know About A Special Needs Parent
Chances are that you know a special needs parent, or you may be one yourself. As a special needs parent, I often don't share my feelings on this aspect of my life, even with my closest friends, so I decided to compile a list here with the goal of building understanding (I was largely inspired by this beautiful post, authored by another parent to a child with a chromosomal disorder). I don't claim to speak for every special needs parent out there, but from the ones I know, some of these are pretty universal. If I've missed any, please leave a comment below.
1. I am tired. Parenting is already an exhausting endeavor. But parenting a special needs child takes things to another level of fatigue. Even if I've gotten a good night's sleep, or have had some time off, there is a level of emotional and physical tiredness that is always there, that simply comes from the weight of tending to those needs. Hospital and doctors' visits are not just a few times a year, they may be a few times a month. Therapies may be daily. Paperwork and bills stack up, spare time is spent researching new treatments, positioning him to sit a certain way, advocating for him in the medical and educational system. This is not to mention the emotional toll of raising a special needs child, since the peaks and valleys seem so much more extreme for us. I am always appreciative of any amount of grace or help from friends to make my life easier, no matter how small, from arranging plans around my schedule and location, to watching my son while I am eating.
2. I am jealous. It's a hard one for me to come out and say, but it's true. When I see a 1-year-old baby do what my son can't at 4 years-old (like walk), I feel a pang of jealousy. It hurts when I see my son struggling so hard to learn to do something that comes naturally to a typical kid, like chewing or pointing. It can be hard to hear about the accomplishments of my friend's kids. Sometimes, I just mourn inside for Jacob, "It's not fair." Weirdly enough, I can even feel jealous of other special needs kids who seem to have an easier time than Jacob, or who have certain disorders like Downs, or autism, which are more mainstream and understood by the public, and seem to offer more support and resources than Jacob's rare condition. It sounds petty, and it doesn't diminish all my joy and pride in my son's accomplishments. But often it's very hard for me to be around typical kids with him. Which leads me to the next point...
3. I feel alone. It's lonely parenting a special needs child. I can feel like an outsider around moms of typical kids. While I want to be happy for them, I feel terrible hearing them brag about how their 2-year-old has 100 words, or already knows their ABCs (or hey, even poops in the potty). Good for them, but it's so not what my world looks like (check out Shut Up About Your Perfect Kid). It's been a sanity saver to connect with other special needs moms, with whom it's not uncomfortable or shocking to swap stories about medications, feeding tubes, communication devices and therapies. Even within this community, though, there is such variation in how every child is affected. Only I understand Jacob's unique makeup and challenges. With this honor of caring for him comes the solitude of the role. I often feel really lonely in raising him.
4. I wish you would stop saying, "retarded," "short bus," "as long as it's healthy... " I know people usually don't mean to be rude by these comments, and I probably made them myself before Jacob. But now whenever I hear them, I feel a pang of hurt. Please stop saying these things. It's disrespectful and hurtful to those who love and raise the kids you're mocking (not to mention the kids themselves). As for the last comment, "as long as it's healthy," I hear a lot of pregnant women say this. Don't get me wrong, I understand and share their wishes for healthy babies in every birth, but it's become such a thoughtless mantra during pregnancy that it can feel like a wish against what my son is. "And what if it's not healthy?" I want to ask. (My response: you will be OK. You and your child will still have a great, great life.)
5. I am human. I have been challenged and pushed beyond my limits in raising my son. I've grown tremendously as a person, and developed a soft heart and empathy for others in a way I never would have without him. But I'm just like the next mom in some ways. Sometimes I get cranky, my son irritates me, and sometimes I just want to flee to the spa or go shopping (and, um, I often do). I still have dreams and aspirations of my own. I travel, dance, am working on a novel, love good food, talk about dating. I watch Mad Men, and like a good cashmere sweater. Sometimes it's nice to escape and talk about all these other things. And if it seems that the rest of my life is all I talk about sometimes, it's because it can be hard to talk about my son. Which leads me to the final point...
6. I want to talk about my son/It's hard to talk about about son. My son is the most awe-inspiring thing to happen to my life. Some days I want to shout from the top of the Empire State Building how funny and cute he is, or how he accomplished something in school (he was recently voted class president!). Sometimes, when I'm having a rough day, or have been made aware of yet another health or developmental issue, I might not say much. I don't often share with others, even close friends and family, the depths of what I go through when it comes to Jacob. But it doesn't mean that I don't want to learn how to share our life with others. One thing I always appreciate is whenever people ask me a more specific question about my son, like "How did Jacob like the zoo?" or "How's Jacob's sign language coming along?" rather than a more generalized "How's Jacob?" which can make me feel so overwhelmed that I usually just respond, "Good." Starting with the small things gives me a chance to start sharing. And if I'm not sharing, don't think that there isn't a lot going on underneath, or that I don't want to.
Raising a special needs child has changed my life. I was raised in a family that valued performance and perfection above all else, and unconsciously I'd come to judge myself and others through this lens. Nothing breaks this lens more than having a sweet, innocent child who is born with impairments that make ordinary living and ordinary "performance" difficult or even impossible.
It has helped me understand that true love is meeting someone (child or adult, special needs or not) exactly where he or she is -- no matter how they stack up against what "should be." Raising a special needs child shatters all the "should bes" that we idolize and build our lives around, and puts something else at the core: love and understanding. So maybe that leads me to the last thing you don't know about a special needs parent... I may have it tough, but in many ways I feel really blessed.


I teared up a bit reading this article.  Possibly, I am overly emotional right now because I am dealing with other issues in my family right now.  Maybe, I am just drained.  I do love number 4!  I get so tired of hearing these words thrown around so carelessly.  It is an insult.  I also admit to Number 2. I do get jealous of “typical” families from time to time. 
Anyway- I just wanted to take a minute and share. (and maybe vent!) 

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